"We cannot change the cards we are dealt, just how we play the hand." ~Randy Pausch



Thursday, February 10, 2011

Two Sick Parents

Jason has diabetes. The results weren't even close to normal. We don't know if it's type 1 ore type 2. He needs to see our regular doctor to figure that out.

The nurses here aren't convinced that the labs ran the test correctly. One suggests that he has the test run again. He has had no symptoms and no family history and he's not obese.

I need him to get this figured out so that the girls will have one healthy parent. I'm worried about him.

This was a deal-breaker.

Nothin

Grrr! No news yet. Jason isn't used to getting tests done, so he didn't ask how long we'd have to wait. He said he'd call later today. We'll see what they say.

Run-Down

With bigger needles comes faster blood flow. And when I left on Tuesday I felt terrible. My blood was getting cleaned faster than normal. It really wore me out. They lowered the flow today because I said something about how bad I felt. The nurses can't believe I can go at a flow of 450 for 4 hours. I'm just so tiny!

Tuesday, February 8, 2011

A Week And Then..

We're using the largest needles today and the highest blood flow. It's going well so far! And the head nurse said, "Let's give it a week then we'll get your catheter out." Super! I can't wait! Anna has started grabbing it if I'm wearing a tank top. The last thing I need is for her to pull it out. Could you imagine?

Jason's Tests

I feel terrible. He had to go through alot. On Sunday he collected his urine. On Monday he had to fast before going to the hospital. His tests started at 8 am, so he wasn't too worried about getting hungry. That is until they told him he had to do the 3 hour glucose test. Those of us who have been pregnant may know what I'm talking about. You have to drink this orange yucky sweet stuff and get your blood taken every half hour for 3 hours. I wouldn't normally feel sorry for him since I had to do the test when I was pregnant with Alli, but he is doing all of this for me. That's love.

Jason also had an EKG (which was normal) and a chest x-ray. I suppose this is it. The sugar test is going to be the one to wait for and then we'll know. More waiting.

Monday, February 7, 2011

Food I Miss

I know it's not a dialysis day, but I started to compile a list of foods that I miss. I thought I'd share it. We can call it my "MUST Have After Surgery" list. Here goes:
1. Chocolate Malt from UDF
2. Coke
3. Peanuts
4. Sharp Cheddar Cheese on Crackers
5. Milk
6. Yogurt
7. Snickers
8. Beer
9. Pizza
These are all of the things that are terrible for me and that I'm avoiding. I miss them.

Saturday, February 5, 2011

Very Nice

Ms. T is about 600 years old. But today she offered to help in any way we need when we have surgery. So nice. She won't stop talking to me today. She's half way across the room and doesn't talk that loud, so I'm just nodding and smiling. I hope she goes to sleep soon.

Latest Appointment

My appointment on Thursday was with my kidney doctor. He got a call from my cardiologist and that's why he wanted to see me right away. My blood pressure is out of control and it's putting a strain on my heart. So he decided to double one of my current medications and we have a plan if it doesn't improve in the next 10 days. We'll double it one more time and then we'll add another medication if that doesn't work in another 10 days. That would be my 4th blood pressure medication. Before May my blood pressure had always been normal to low. It's crazy what broken kidneys can do to your body.

Guest Speaker

One of the science teachers at school mentioned in passing that he'd like me to come talk to his classes when he teaches about kidneys. I have to find out what he wants me to talk about. Does he want me to tell my story or have a Power Point and "teach" about kidney function? Should be fun, though.

Thursday, February 3, 2011

A Possible Issue

Well, it couldn't be easy for us. Jason's physical was generally fine, but there was a possible issue. They found glucose in his urine. So that could mean one of two things: It could be no big deal, or it could mean he has diabetes. They say that a urine test for diabetes isn't a very good test, so on Monday he has to fast before going in for his other tests and they will draw some blood. Until then we just sit and worry about him. He has no other symptoms of diabetes.

And, yes, if he's diabetic it's a deal breaker. We start the search over again.

To The Doctor

My kidney doctor's office called this week to set up an appointment. No big deal, right? But his assistant said I need to come in TODAY. She said he's worried about my blood pressure...and probably about my weight, too. I'm worried now. So today I get off of dialysis, go to work for two classes and have a friend cover my 7th bell so I can get to his office by 2:45. Crazy day.

Tuesday, February 1, 2011

Bigger Needles

Yep, we're using bigger needles today. I was afraid they would hurt, but I guess I did an okay job with my cream. Plus, the lady across the unit didn't show up today. So, no screaming. That's always nice. And since the needles are larger they can set my blood flow higher. That means my blood will get cleaner faster and maybe my time can get cut down. That would be amazing!

It's a good thing that at least one person didn't show up today. When I pulled in there was only one car here, so I knew they were short staffed. They took us in late because several techs said they couldn't make it in. I didn't think the roads were that bad, but school is on a 2-hour delay.

Physical

Jason gets a physical today. It's with a nurse practitioner at the Kidney and Hypertension Center. She happens to be my nephrologist's wife. Jason has never had a female doctor before, so he's a little nervous. But he'll be fine.