So Annoying

I got here this morning at 6: 20 for my blood draw. Got a danish and found a comfy seat until 8: 00 when I found some hot chocolate.

I got to the kidney doctors office at 8:30 right when the office opened. Now it's nearly 11: 00 and I am yet to see the nurse practitioner or the doctor. They are both here...I hear them ordering Chipotle right outside my door.

All I want to do is go home and lay down. I have a feeling I'm not getting much rest today.

Want to cry...

Best Day So Far

I know...from worst to best, right. We figured out why Anna wasn't sleeping. She has a cold. We set up her humidifier with some vicks. Then we gave her some tylenol and some all-natural cough medicine. It has made all the difference in the world.

I felt great all day. My bp is still low, so I'm officially off of all bp meds.

However, some of my bloodwork came back looking not so good. My white blood count was really high, so they think I have some sort of infection. I'm on a super strong antibiotic while they wait for my blood and urine cultures to come back. I could have Anna's cold brewing, or it could be a urinary tract infection.

I mean, I haven't peed in a year in a half, so I guess that wouldn't surprise me...

Keep you posted.

Worst Night Ever

I feel like maybe I've said that before. Anna wouldn't sleep. Jason got in the car and drive all of the way to Fountain Square before he finally got her to sleep. They stayed in the car for 10 minutes after they got home. He finally brought her in, kept her in her car seat and fell asleep on the couch.

I wish I could help more, but I can't pick her up for 5 more weeks. He's really stressing out...

And I felt horrible, too. My blood pressure is super low even without bp medicine. It makes me hot and cold at the same time. Sweaty and chilled as well as dizzy. Plus my pain is bad and it's hard to get comfy in bed. I need more pain pills.

I'm still loosing weight. I'm at 108. You can see my ribs.

Jason wants me to get some "weight-gainer 2000" from GNC...we'll see what the docs say.

Routine Hospital Visit

I'm here for my MWF blood work. I guess Wednesdays are the lightest day of the week. New people come MWF, older people only on MF and really well established people come only on M. Today they got me in before 6: 30. Now I have to wait two and a half hours until the kidney docs office opens.

They should really have beds here for us...

I get my last iv infusion today. It took for hours on Monday. hopefully we'll start earlier today. The visit with the docs took two hours since it was my very first one.

At the end of the day, Dad was waiting for me with a Snickers bar. Yum!

Things Look Amazing

Okay, blood pressure has improved. It's still low for me, but they think out could be a sign that it's going back to normal. Can you believe it? Not I! Meanwhile, we adjusted my meds and I will only take some of them if my pressure is above a certain number.

Self-medicating...I'm good at that!

My other numbers are great. Phosophorus is super low so more dairy, chocolate , nuts and cola. It's strange to go over board on the things I've been avoiding for so long.

Soccer parent is bringing us dinner tonight...stuffed shells, salad, bread and cake. Yummo! I'm hungry!

Waiting Game

Sitting in the doctors office. I was discharged on Saturday and their voicemail was down. So we are waiting for another report from the hospital.

My blood pressure had been around 88/72. Not real good. In fact, I feel like crap. So they brought me back to let me lay down. I think that and the salty peanut butter crackers and bottle of water are helping.

After this I go upstairs to get another anti rejection treatment. It takes 4 to 6 hours. So the longer I wait here the longer it takes up there.

hooray...

Ohhs, The Fluids!

They want me to drink 3 liters of fluid a day. Plus, I'm on iv fluids. I'm peeing every 20 minutes. I have to unplug myself and roll my iv in to the bathroom with me. How annoying! But I guess it's better than the alternative.

I took a sleeping pill last night with my pain pill. I slept from 10 pm til 530 am. Pretty good for the hospital. I asked for another one for tonight.