"We cannot change the cards we are dealt, just how we play the hand." ~Randy Pausch

Saturday, June 25, 2011

New Donor Update

My newest donor had her physical and met with the social worker. All is well. She has to do the 24-hour urine test but she doesn't want to do it until August. Then we will have to go to school to talk to the principal to tell him our plans.

Thursday, June 23, 2011

First Time Ever

Today wasn't good. I forgot my dialysis bag. And that meant no pillow, no blanket, and no headphones. They offered me a pillow and a sheet. The sheet was made of paper. It was better than nothing. But I couldn't really block out the light. And having no headphones made the loud ladies even more annoying.

Tuesday, June 21, 2011

Dialysis at Home?

They asked me again today if I would ever think of doing dialysis at home. If I do peritonial then I would not be able to swim because I'd have a catheter. But I'd be able to do it while I sleep. If I do hemo dialysis at home it would be 2 hours six days a week. I would have to sick myself, too. Not entirely sure how I feel about that.

I told them I want to wait to see how things turn out with my latest donor. She gets her first tests done tomorrow. She said she would keep me posted.

Wednesday, June 15, 2011

Way Too Much!

Woah, it's been a while since I gained that much weight between treatments. I gained 3.5 kilos from Satruday to Tuesday. And I felt it during treatment. My muscles and joints ached the whole time. I just wanted to get off the machine. When I got home I had to bring the girls to swimming lessons. That was tough because I was worn out! After that I slept for a couple of hours, and honestly could have slept even more. I was counting down the hours until bedtime.

And, I guess I was wrong about the loud lady. She's back. And she's louder than ever. Terrible.

Sunday, June 12, 2011


It's not what you think...nothing more to do with transplant at this time...

But, one of the loud ladies has been moved. Not just moved to another chair, to another time or place all together! She was not there on Saturday and I slept nearly the whole! Wow, that makes it much easier.

Thursday, June 9, 2011

Just Keep Calling

I called the hospital this morning. She said calls are in to my final donor. She also said that we can get all of the testing done in two days. We'll see.

Even if we do get the tests done that quickly, my donor doesn't want to do the surgery until August. She has two vacations planned for July. Fine by me.

Wednesday, June 8, 2011


Well, my donor backed out. I don't blame her, her doctors suggest she not go through with it. For medical reasons. But what pisses me off is that she told the transplant coordinator THREE WEEKS AGO! And I had a back-up just sitting there ready to move forward. I'm so angry!

So I guess all I can do is call her EVERY DAY until we get this last chance moving.

Tuesday, June 7, 2011

Still Nothing

Yep, nothing.

Friday, June 3, 2011

School's Out For Summer!

This year more than ever I'm so excited for summer to be here. Last summer was dreadful. The three before that I was in class every day. So, for the first time in four years I'll actually have a "relaxing" summer. Of course, I will still have dialysis three days a week. That is until I have surgery, if I do. That would really put a hamper on my "relaxing" summer, I guess. But I'll take it, for sure!