"We cannot change the cards we are dealt, just how we play the hand." ~Randy Pausch

Saturday, April 30, 2011

Thank Goodness

Jason's night job is over. It was a two week deal...they finished grading all of the tests. They will probably ask him to start again soon for another project. Although we can use the money, I hope he says no. The money isn't worth the stress I've been feeling. But today we have no plans, so I think I get to take a nap!

The girls spent the night at my mom and dad's last night so Jason and I could go to a Reds game with my cousin. It was fun...cold...but we had a good time. I can't wait to see the girls this morning!

Thursday, April 28, 2011

Nothing New

Not much new to report. We're really busy at home since Jason is working a long-term sub job and a test grading job at night. He's home after 10:00pm, so I've been doing it almost all alone.

I'm tired...

Monday, April 25, 2011

The Latest From My Match

I got an email from my match today. Her first appointment went well...100% healthy! Our coordinator is supposed to call her about setting up the rest of the appointments. But my match is in Boston visiting her newborn nephew. Lucky her!

The Nurse Practitioner stopped by today. She's going to check my labs on Thursday one more time and if they look good then she'll reduce my time by 15 minutes! I never thought 15 minutes would mean so much.

Spring Break

I was on break last week and I realized that meant I didn't have my computer with me all week. So, I'm sorry I haven't updated my blog as much as many of you would like (Dad).

Things are going well. I'm going to get in touch with my match today to see how things are going. If she's having any doubts I'm going to ask her to let me know so that my OTHER match can start getting the rest of the testing going. We'll see!

The girls are great...Anna had a couple of doctors appointments last week. Her developement is that of a 6-7 month old (she's chronologically 8 months old, so we're okay with that). Her ears and eyes are great. They did mention that her ankles bend a little more than they are supposed to. So we go back in 9 months and if she's not walking by then she might need some short braces on her legs. Nothing to worry about right now.

Jason's doing great with his "diet." He says he's lost about 25 pounds since we found out abou his diabetes. Good deal...he looks great. That, and getting contacts and he's a whole different person!

Saturday, April 23, 2011

Blogging on My Phone

First time for everything. Expect some typos!

Things have been going well lately, I guess. I have felt weak this week. It's kind of unexpected because I didn't have to work this week. I was sick to my stomach on Tuesday. I felt much better after I threw up. I think I just need to make sure I eat when I get home. Sometimes I get a headache that makes me feel sick and eating helps.

Tomorrow is Easter and my phosphorus had been good enough that I think I can eat a Reece's peanut butter egg. I can't wait!

Thursday, April 14, 2011

Good Labs

My labs came back today and they were really good! My phosphorus is 3.6. It needs to be below 5...yes! I told them I was going to go home and eat some ice cream. They suggested I not do that. Dang.

I heard today that if your phosphorus is too high then certain parts of your body could turn black and fall off. Yikes! I saw pictures of toes falling off, but the nurse was talking about female and male body parts falling off. Yowzers!

Wednesday, April 13, 2011

Holy Headache

Yesterday after school was terrible. I had the worst headache ever! I'm not exactly sure what makes a headache a migraine, but it was a bad one. I threw up after school...thank goodness the garbage can was there. I had a rough time getting home. I almost pulled over. I was sweaty and cold at the same time...wonderful combination. And when I got home it was even worse. I took some advil and checked my blood pressure. It was a little high, so I took some BP meds.

About 45 minutes later I was able to get a little nap in and I felt 100 times better. I took the girls to get pictures taken (so cute) and at dinner like normal. I even had dessert.

Tuesday, April 12, 2011


Today I was moved over one chair. And it was so peaceful! Plus, the doctor said that we can talk about reducing my time if I can keep my phosphorus down. It was down this week, so yay!

Monday, April 11, 2011

Moving...Not Far

So, I made a comment on Saturday about how loud the ladies next to me are. And my nurse agreed. She said she's thinking about moving them, but it would be easier to move me. I'd only go over one chair, but it would at least be another 5 feet away. I jumped at that idea. But if there's another chair that opens up across the room, sign me up!

I've started to NOT bring my computer with me to dialysis. It's becoming more of a hassel. So if you don't see a blog post immediatly on Tuesday, Thursday or Saturday, it's not because something went wrong. I'll get to posting shortly after I get off.

Thursday, April 7, 2011


Today was not a good dialysis day. I felt crummy, but I figured out that was because I didn't' take my steroid this morning. And then the ladies next to me were incredibly loud again. I can't stand it! And another lady turns her TV up as loud as possible. Grr...

But today I am officially on the kidney transplant list! I got confirmation from our transplant coordinator this morning. Yeah!

This week I've been noticing that I'm having muscle twitches. It doesn't happen when I'm up and walking around, but when I'm sitting or laying down. They think it's my potassium. They told me to go to the ER if it doesn't get better. But in the meantime they changed my potassium bath so that less potassium is removed from my blood. I think I might eat a banana.

Tuesday, April 5, 2011

Long Weekend

Since we left for Cleveland on Friday, I went Saturday, Sunday and Monday with a treatment. I gained 3.2 kilos (7-ish pounds). So today's treatment was harder than usual. But my blood pressure was really good the whole time. Nice.

Monday, April 4, 2011

A Long Night

Sorry I didn't blog on Saturday. I actually was dialyzed on Friday night, instead. We went to Cleveland for the weekend...

But Thursday night was eventful to say the least. I had a nose bleed that started at 8:30 pm. I have never seen so much blood come out of a persons nose or mouth. It was disgusting! By 10:00 I was getting pretty scared, so I called my mom to come back to the house and stay with the girls while Jason took me to the ER.

They actually took me in pretty quickly. I think it's because I had just sprayed blood all over the public restroom. About a half-hour after I got a room the doctor came in to try to get the bleeding to stop. Do you know what they use to make noses stop bleeding? A mixture of Afrin nose spray and...COCAINE! Seriously, the bottle said "cocaine" and I just joked about it. But the doctor said, "Yep, it's the real thing." It apparently constricts the blood vessels and make the bleeding stop. It also numbed my nose and lips a bit.

But that wasn't the worst part. After another hour he decided to "pack" my nose. I thought he'd just shove some cotton up my nostril, but he had another idea. A "rhino-rocket." Sounds cool. Hurts like hell. It's a plastic balloon that gets stuck in your nose (I swear it almost touched my brain). Then they pump air into it to put pressure on the vessel that is bleeding. You should also know that a large hard plastic tube hangs out of the nose and is taped to the side of your face. Uh huh. Attractive.

Needless to say, the doctor told me to stay home from school on Friday. Another unpaid day. But it hurt so bad and I'm not sure I could have made it though the day if I did go. The pain meds are all fine and dandy, but they usually just make me feel drunk...and still in pain.