"We cannot change the cards we are dealt, just how we play the hand." ~Randy Pausch

Friday, July 29, 2011

My Arm

I had my arm worked on today. At the beginning I could feel everything they were doing. I could even feel the warm blood running down my arm. I was so uncomfortable. But when I started flapping my other arm, they got the idea. It wasn't long before they gave me a sedative and I guess I fell asleep. I say, "I guess" because I can never remeber what happens after they give me that medicine.

I rememeber getting in the wheel chair after I was done. Then I remember asking for some crackers. I remember eating my crackers, drinking a Capri Sun and then getting dressed. They walked me out to Jason and he walked me to the car. I called my mom, I'm told, but I don't remember that converstaion.

We had lunch, well I had breakfast, and then picked up my pain meds. I asked for something besides vicodin because it always makes me hyper and keeps me awake. I know, it's weird cause it's supposed to knock you out. I'm not sure what this new medicine is called, but I was able to come home and take a nap.

Even after having the angipolasy today, they can still use my arm at dialysis tomorrow.

Wine Tasting

My friend from high school had a brother who once had a liver transplant. I think I talked about him last year around this time. Her family is having a fundraiser for the Life Center who helped her family during his transplant. Last year they sent us a check to help us...we couldn't believe it. And this year, they are doing it again. The party is on Saturday. We get to go this year, so that's fun! I can't drink much wine, but it will be nice to see all of the people who are willing to help us out.

Still waiting...

Thursday, July 28, 2011

Giving Nothing Away

My principal called the other day to talk about my plans for the year. I told him that I cannot predict when a transplant could happen. I tried really hard not to tell him who my potential donor is. I know she wants to be involved in telling school when the time comes.

Hopefully the time will come soon.

Wednesday, July 27, 2011

Dialysis at Home?

Not for me. Not now anyway. I'm waiting to see how transplant works out. But one of the loud ladies came in on Tuesday saying she wants this to be her last week in the clinic.

"Have you been training?" a tech asked.

"No," she responded.

I think the tech was afraid to tell her that it takes up to eight weeks of training before they let you dialyze at home. Plus, you have to be pretty responsible since you have to do it six days a week. She probably skips her treatment once a week. Not sure she's such a great candidate.

I do not want to be there when someone tells her that.

Sunday, July 24, 2011

Almost Standing

Wow, she's moving quickly now! Anna just started crawling within the past month, and now she's pulling herself up on everything she can get a grip on. And she'll let go and try to stand on her own. She only lasts a second or two, but she's trying hard!

One of the doctors mentioned the possibility of her needing braces on her legs if she's not walking by the time she's 15 months old. I think she'll be fine.

Funny Doctor Story

I met with my ob/gyn on Friday. It was the first check up I've had with him since he sent me to the high-risk doctors. Here's how our conversation went:

"So, you're getting pretty skinny."
"Yeah, they keep me pretty dry."
"What are you using for birth control?"
"Oh, I had my tubes tied."
"Thank goodness! We were going to have to have a serious conversation about that!"


Thursday, July 21, 2011

Nothing, Still

My donor is still on vacations, two weeks in Canada. She's going to do the last test soon, she promises.

My arm is giving me problems again. It's been bleeding long after I'm taken off the machine. They say it could be a sign on stenosis of my arm. Not sure exactly what that means, but I might need to go to the Access Center to have it worked on again. It's no big deal now that I'm not in school. And Jason can bring me, so it's no problem.

I was very excited to find out that one of the loud ladies had her chair moved! Ha, ha! It's been much easier to sleep. Today I got almost 3 hours of sleep. Good deal.

Thursday, July 14, 2011

Aunt Kelly

Did I mention that I'm going to be an Aunt? Jason's brother's wife is due at any moment! In fact, I'm pretty sure she's nearly dilated 6 inches. Any day now! I'm so excited!

In Between Vacations

My donor just finished on vacation and is on her way to Canada for two weeks. She called and said she promises to finish the testing as soon as she gets back.

I hope so...

Wednesday, July 13, 2011

There's No Stopping Her Now

On my last post I said that Anna wasn't really crawling, just scooting. Well, now she is! Like a crazy woman, too. She's all over the place. It's kind of hard to explain how she does it though. She sort of keeps one leg bent underneath her body and the other one is straight out behind her pushing off. It's funny, but I'm so glad she's moving around.

She'll be one next month!

Tuesday, July 5, 2011

Back By Popular Demand

Sorry...I'm not sure why I haven't been posting. I guess it's because I'm not on my computer every day now that I'm out of school.

All that I have been doing is going to dialysis and going to the pool. Tough life, huh? I'm getting sun and getting rest. It's still hard to get up at 5:15 on dialysis days.

Alli has swimming lessons on Monday, Tuesday, Wednesday and Thursday. It's nice to have Jason home so he can get her ready while I'm at dialysis. We'll often have Anna take a nap during swimming lessons and I can stay home with her and rest a bit. Then, it's lunch and back to the pool!

Anna Update

Anna is now almost 11 months old. I can't believe she was born nearly a year ago! She's rolling around on the floor, but not really crawling. We have to keep an eye on her cause she can get from one end of the room to the other! She will pull herself up onto her knees by holding on to a table or the couch.

She is still really small. My mom asked if she'll start taking regular milk instead of formula when she turns one. I'm not really sure. Alli did, but I think Anna is still so small that she needs the extra calories. We'll see.

No, no donor update.