Friday, March 9, 2012
Happy World Kidney Day!
March 8th was World Kidney Day. It is meant to bring attention to kidney disease and kidney donation. I only heard about it when I was watching TV and saw that Nick Cannon has Lupus Nephritus which is an autoimmune disease that only attacks your kidneys. He seems to be doing well, as am I. I saw my Sjogrens doctor on Monday and she said I'm good! I have no signs of Sjogrens and she said that I can try to get off of my steriod. It will be the first time in 3 years that I'll be off of this terrible drug. I say terrible, but it really is a wonder drug that has a lot of terrible side effects. On the other hand, she did say that I tested positive for Lupus again. But, here's how it works. If you have a "score" of 0 to 5 then you are negative for Lupus. Six through 10 means they can't tell for sure. Then 11 thru whatever is positive. My number was 13. But...she said the number can go as high as "we aren't even able to count that high." So, in the grand scheme of things my Lupus is very mild and she doesn't even want to treat me for it. I'm starting to think that the immune suppressant drugs that I'm on for the kidney transplant are acutally helping the autoimmune disease, too. We'll see...
Posted by Kidney Mom at 7:50 AM