My labs came back today and they were really good! My phosphorus is 3.6. It needs to be below 5...yes! I told them I was going to go home and eat some ice cream. They suggested I not do that. Dang.
I heard today that if your phosphorus is too high then certain parts of your body could turn black and fall off. Yikes! I saw pictures of toes falling off, but the nurse was talking about female and male body parts falling off. Yowzers!
Thursday, April 14, 2011
Wednesday, April 13, 2011
Holy Headache
Yesterday after school was terrible. I had the worst headache ever! I'm not exactly sure what makes a headache a migraine, but it was a bad one. I threw up after school...thank goodness the garbage can was there. I had a rough time getting home. I almost pulled over. I was sweaty and cold at the same time...wonderful combination. And when I got home it was even worse. I took some advil and checked my blood pressure. It was a little high, so I took some BP meds.
About 45 minutes later I was able to get a little nap in and I felt 100 times better. I took the girls to get pictures taken (so cute) and at dinner like normal. I even had dessert.
About 45 minutes later I was able to get a little nap in and I felt 100 times better. I took the girls to get pictures taken (so cute) and at dinner like normal. I even had dessert.
Tuesday, April 12, 2011
Ahhh
Today I was moved over one chair. And it was so peaceful! Plus, the doctor said that we can talk about reducing my time if I can keep my phosphorus down. It was down this week, so yay!
Monday, April 11, 2011
Moving...Not Far
So, I made a comment on Saturday about how loud the ladies next to me are. And my nurse agreed. She said she's thinking about moving them, but it would be easier to move me. I'd only go over one chair, but it would at least be another 5 feet away. I jumped at that idea. But if there's another chair that opens up across the room, sign me up!
I've started to NOT bring my computer with me to dialysis. It's becoming more of a hassel. So if you don't see a blog post immediatly on Tuesday, Thursday or Saturday, it's not because something went wrong. I'll get to posting shortly after I get off.
I've started to NOT bring my computer with me to dialysis. It's becoming more of a hassel. So if you don't see a blog post immediatly on Tuesday, Thursday or Saturday, it's not because something went wrong. I'll get to posting shortly after I get off.
Thursday, April 7, 2011
Grr...
Today was not a good dialysis day. I felt crummy, but I figured out that was because I didn't' take my steroid this morning. And then the ladies next to me were incredibly loud again. I can't stand it! And another lady turns her TV up as loud as possible. Grr...
But today I am officially on the kidney transplant list! I got confirmation from our transplant coordinator this morning. Yeah!
This week I've been noticing that I'm having muscle twitches. It doesn't happen when I'm up and walking around, but when I'm sitting or laying down. They think it's my potassium. They told me to go to the ER if it doesn't get better. But in the meantime they changed my potassium bath so that less potassium is removed from my blood. I think I might eat a banana.
But today I am officially on the kidney transplant list! I got confirmation from our transplant coordinator this morning. Yeah!
This week I've been noticing that I'm having muscle twitches. It doesn't happen when I'm up and walking around, but when I'm sitting or laying down. They think it's my potassium. They told me to go to the ER if it doesn't get better. But in the meantime they changed my potassium bath so that less potassium is removed from my blood. I think I might eat a banana.
Tuesday, April 5, 2011
Long Weekend
Since we left for Cleveland on Friday, I went Saturday, Sunday and Monday with a treatment. I gained 3.2 kilos (7-ish pounds). So today's treatment was harder than usual. But my blood pressure was really good the whole time. Nice.
Monday, April 4, 2011
A Long Night
Sorry I didn't blog on Saturday. I actually was dialyzed on Friday night, instead. We went to Cleveland for the weekend...
But Thursday night was eventful to say the least. I had a nose bleed that started at 8:30 pm. I have never seen so much blood come out of a persons nose or mouth. It was disgusting! By 10:00 I was getting pretty scared, so I called my mom to come back to the house and stay with the girls while Jason took me to the ER.
They actually took me in pretty quickly. I think it's because I had just sprayed blood all over the public restroom. About a half-hour after I got a room the doctor came in to try to get the bleeding to stop. Do you know what they use to make noses stop bleeding? A mixture of Afrin nose spray and...COCAINE! Seriously, the bottle said "cocaine" and I just joked about it. But the doctor said, "Yep, it's the real thing." It apparently constricts the blood vessels and make the bleeding stop. It also numbed my nose and lips a bit.
But that wasn't the worst part. After another hour he decided to "pack" my nose. I thought he'd just shove some cotton up my nostril, but he had another idea. A "rhino-rocket." Sounds cool. Hurts like hell. It's a plastic balloon that gets stuck in your nose (I swear it almost touched my brain). Then they pump air into it to put pressure on the vessel that is bleeding. You should also know that a large hard plastic tube hangs out of the nose and is taped to the side of your face. Uh huh. Attractive.
Needless to say, the doctor told me to stay home from school on Friday. Another unpaid day. But it hurt so bad and I'm not sure I could have made it though the day if I did go. The pain meds are all fine and dandy, but they usually just make me feel drunk...and still in pain.
But Thursday night was eventful to say the least. I had a nose bleed that started at 8:30 pm. I have never seen so much blood come out of a persons nose or mouth. It was disgusting! By 10:00 I was getting pretty scared, so I called my mom to come back to the house and stay with the girls while Jason took me to the ER.
They actually took me in pretty quickly. I think it's because I had just sprayed blood all over the public restroom. About a half-hour after I got a room the doctor came in to try to get the bleeding to stop. Do you know what they use to make noses stop bleeding? A mixture of Afrin nose spray and...COCAINE! Seriously, the bottle said "cocaine" and I just joked about it. But the doctor said, "Yep, it's the real thing." It apparently constricts the blood vessels and make the bleeding stop. It also numbed my nose and lips a bit.
But that wasn't the worst part. After another hour he decided to "pack" my nose. I thought he'd just shove some cotton up my nostril, but he had another idea. A "rhino-rocket." Sounds cool. Hurts like hell. It's a plastic balloon that gets stuck in your nose (I swear it almost touched my brain). Then they pump air into it to put pressure on the vessel that is bleeding. You should also know that a large hard plastic tube hangs out of the nose and is taped to the side of your face. Uh huh. Attractive.
Needless to say, the doctor told me to stay home from school on Friday. Another unpaid day. But it hurt so bad and I'm not sure I could have made it though the day if I did go. The pain meds are all fine and dandy, but they usually just make me feel drunk...and still in pain.
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